Clayton's Miracles

  • 1. Life after a terminal cancer diagnosis as an infant
  • 2. Learning to walk after being paralyzed as an infant
  • 3. Having his son, Max after being told that he was infertile due to the cancer & its treatment.
  • 4. Making the adoption connection with Violet to give his parents a second grandchild.
  • 5. Waking up from a coma and diagnosis of persistent vegetative state.
  • 6. Retention of cognitive abilities despite testing that indicated only his brain stem was functioning.
  • Future # 7. Learning to walk and talk again.
  • Future #8. Being Max's hero and raising him into adulthood.

Under Construction

Please bear with us as we add and elaborate on the details of Clayton's story.  Read the most recent dates and then skip down to the first posts. 

Tuesday

March 22nd The Elephant in the room

 Grandmom and Aunt Franny came down with Max and I to see Clayton.

I come home every night and look up things about being in a coma.  We are trying to do everything that we can to stimulate his senses.  We have his ipod that contains messages and music on it playing when no one is visiting.  Aunt Franny purchased scented and flavored chapsticks which elicit reactions from his taste, smell and sense of touch.  We have scented lotions to massage his fee and hands.  We are often holding his hand, talking to him, reading to him and praying with him.  We hug and kiss him and tell him how much we love him.  We hope he can hear all of this and knows how much we care.

Despite all of the positive things that we are doing, he hasn't started to wake up.  Our hope is fading but we are choosing not to notice.  It's the elephant in the room that no one wants to address.  We know that the longer it is that he doesn't wake up, the less likely it is that he will.  We also know that Clayton does not fit the typical protocol for anything.  He does not react typical to medications and even medical procedures.  His system is slow since he needs dialysis to clean his blood and it does not do as good of a job as a kidney does.  His digestive system is extraordinarily slow (he had a GI study that showed whole, undigested cheerios in his stomach 12 hours after he ate them).  So we are clinging to the hope that he will wake up extraordinarily slow.


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