Clayton's Miracles

  • 1. Life after a terminal cancer diagnosis as an infant
  • 2. Learning to walk after being paralyzed as an infant
  • 3. Having his son, Max after being told that he was infertile due to the cancer & its treatment.
  • 4. Making the adoption connection with Violet to give his parents a second grandchild.
  • 5. Waking up from a coma and diagnosis of persistent vegetative state.
  • 6. Retention of cognitive abilities despite testing that indicated only his brain stem was functioning.
  • Future # 7. Learning to walk and talk again.
  • Future #8. Being Max's hero and raising him into adulthood.

Under Construction

Please bear with us as we add and elaborate on the details of Clayton's story.  Read the most recent dates and then skip down to the first posts. 

Friday

May 22nd-Rice krispies and A1

Clayton asked me for A1 and rice krispies the other day.  Dad went down to visit him today and brought them.  He's wanted rice krispies since he started to wake up from the coma.  It's funny how the simple things seem so wonderful when your life has been stripped bare.

I think that staying at the hospital has really started to take a toll on Mom.  She really needed a break.  I'm glad that Dad came down today and let her go out.  I hope her little break helped a little.

Clayton had a procedure today to put another line in his neck.  When he came back, he noticed that Mom had thrown away the flowers that were dying.  They were the ones that he had gotten for her at St. Agnes for Mother's Day.  He was sad because he had worked so hard to get them for her.  She asked me to bring some replacements down with me tomorrow.

Hopefully, I will be able to give them a break so that Mom can go home to be with Dad and work on some things together.  I feel so overwhelmed with planning the benefit, the changes at work and taking care of two kids.  I'm trying to maintain a little "normal" for them.  

Lately, I feel like "woe is us" and "why did this happen" to us.  I just feels so blue. 

Clayton will be released from the hospital, soon.  It looks like insurance does not want him to go back to St. Agnes since he's not on the vent.  He's really not quite strong enough for Moss or Bryn Mawr.  The last remaining option is skilled nursing (a nursing home).  If that's what's best, we'll need a place close to home with young people there.  Mom is so worried that he'll become depressed there.  She's putting so much pressure on making the right decision.  He can only go to a rehab once this year for about 37days.  Docs are also looking into removing his kidneys.  So, in addition to where, is the question of when.  Is before the surgery better or after or will they even follow through and take the kidneys out?  Where's the crystal ball when you need it?

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